Murray should co-sponsor Nino’s Act
Jul 20 2009
I am asking all constituents of the state of Washington to contact Sen. Patty Murray, a member of the Senate Finance Committee, to encourage her to sign on as a co-sponsor of Senate Bill No. 406, Nino’s Act. Nino’s Act offers children with rare diseases a chance to live a full life and to relieve their families of the emotional and financial hardship that goes along with caring for their sick child.
With the passing of Nino’s Act, children with a rare disease being treated at the National Institutes of Health can receive their treatment at home, where their families can be together and new patients can receive benefits of new treatments.
Across our country, there are thousands of children who share the common need of continuity of ongoing successful treatment for their rare disorders. Through successful drug treatment, these children would be able to resume their normal childhoods.
Courtney Moore, Newville, Pa.
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